Helping to Prevent Bleeds with Hemophilia
Hemophilia is a bleeding disorder characterized by a lack of or low levels of certain proteins called clotting factors. These clotting factors are responsible for helping the blood to clot properly. There are several types of hemophilia, but they all involve low levels of either clotting factor VIII or factor IX.
Bleeding with hemophilia refers to the excessive bleeding that can occur in individuals with this condition. Hemophilia is a chronic bleeding disorder where the blood does not clot properly. It is typically caused by a deficiency in clotting factors, specifically factor VIII or IX.
To reduce the risk of bleeding with hemophilia, a person can take several actions:
- Follow preventive treatment recommendations: Prophylactic treatment helps prevent both bleeding from minor injuries and damage to joints caused by internal bleeding. Preventive treatment includes regular doses of clotting factor or non-factor treatments on a regular basis.
- Clotting factor preventive treatments include Factor VIII (for Hemophilia A) or Factor IX (for Hemophilia B)
- Non-clotting factor preventive treatments include newer treatments that bypass the missing factor.
- Regular low-impact exercise or non-contact sports: Engaging in activities that are gentle on the joints can help maintain joint health and reduce the risk of bleeding. It is important to consult with a healthcare professional before starting any new exercise regimen.
- Take extra precautions during physical activities: When participating in sports or high-impact activities, it is important to consult a physician and take extra precautions to minimize the risk of injury and bleeding. To protect against injuries that can cause bleeding, it is advisable to wear protective gear such as helmets during athletic activities or high-impact sports.
- Avoid certain medications: Certain medications can increase the risk of bleeding in individuals with hemophilia. Aspirin, non-steroidal anti-inflammatory drugs (NSAIDs), and blood thinners like heparin should be avoided. It is crucial to speak with a doctor before taking any new medication.
- Practice good dental hygiene: Maintaining good oral health is important for individuals with hemophilia as dental procedures can increase the risk of bleeding. It is recommended to consult with a doctor or qualified healthcare professional before undergoing any dental procedures.
- Get tested for blood-borne infections: Regular testing for blood-borne infections such as HIV and hepatitis is recommended by the CDC for people with hemophilia. Vaccinations for hepatitis A and B are also advised to protect against these conditions.
- Seek support from Hemophilia Treatment Centers (HTCs): HTCs are available to provide support and specialized care for individuals with hemophilia. A study conducted by the CDC found that those who used an HTC were 40% less likely to die from complications related to their condition.
Remember, it's always essential to consult with a healthcare professional or doctor before making any changes to your treatment plan or starting any new medications or activities. They can provide personalized advice based on your specific situation and medical history.
Medication dosing may be affected by many factors. Check with your health care professional about dosing for your individual situation. Side effects can occur. Check with your health care professional or read the information provided with your medication for side effect information.